I’ll admit that I’ve been missing from YouTube (for months) and also very inconsistent in my blog (I’ve been missing for weeks without updates, sorry). It’s because I’ve been suffering from Fibromyalgia: an incurable ‘invisible disorder’.
I find the need to share this because I have been suffering since last year without knowing why. Finally, I got the the right diagnosis (thanks to my fiancé’s doctor friend) after months of pointless tests, wasted $$ on the wrong medications and treatments.
Here’s a v-log sharing my experience with Fibromyalgia. ? PS: if you have no time to watch the whole thing, you can alway skip it to 4:59 min for the symptoms!
Also, I only had an average of 4-5 hours of waking/productive hours, which limited a lot of things I wish to do. My fatigue was so bad, there was a time that I was bedridden most of the week. I also have floaters in my eyes all the time, sometimes disrupting my attention and my eyes will also get so dry (even after gallons of eye drops), sometimes it’s so dry my eyes hurt.
…crying myself to sleep some nights -- these pain will travel from the shoulders to the head, sometimes lower back and legs too.
Not to mention that I was also crying myself to sleep some nights -- these pain will travel from the shoulders to the head, sometimes lower back and legs too. Now, I can’t even go to the gym for a normal 30-min run, without feeling muscle aches like I’ve been in a WWE match.
One last thing which I forgot to mention in the v-log, is my IBS. Due to this shitty disorder, I have problems digesting and interesting this is what I found: People with fibromyalgia have different gut bacteria!
Now, I can’t even go to the gym for a normal 30-min run, without feeling muscle aches like I’ve been in a WWE wrestling match.
Honestly… I have been spending so much time feeling tired and painful, I was so depressed. The only blessing from this is that I have a loving fiancé who takes care of my every need and I work from home. You’ll see me mentioning about my fiancé repeatedly (wait till you see me in real life, I can talk about him for hours) NOT because I wanna show off or anything… but because I want to show appreciation for what he’s done for me -- including all of my shitty ups and downs.
The only blessing from this is that I have a loving fiancé who takes care of my every need.
I’m currently on medication (Lyrica) and it did make me feel more energetic for longer hours now, with less pain. However, it will knock me out sleeping for longer hours -- which explains why I’m only waking up around 11am-12pm everyday. People who didn’t know thought I’m living the LIFE or I’m lazy -- but truth be told, it’s the drugs (I won’t complain about the quality of sleep though, it’s great).
I was also advised to do mild exercises and also CBT psychotherapy. Though these are not exactly the ‘remedy’ since Fibromyalgia is incurable and causes are still mysterious -- but at least my specialist is now giving these options for me to better handle my symptoms, easing and soothing them. It’s something right?
Fibromyalgia is incurable and causes are still mysterious
I don’t know what the future holds for me to be honest, and I’m a little scared. Whatever it is… let’s be positive it will be a better future ? Thanks for reading & let’s hope I’ll get well soon. Till’ then, ciaos!